description:
NOTE: It also contains the “The Last Six Months” part.
The story of Shiloh Pepin, an eight-year-old girl from America born with sirenomelia, a rare and debilitating condition that means her legs have been fused together since birth. Born with only one kidney and no lower colon, bladder, uterus or genitals, she has already endured years of medical treatment and, as she prepares to undergo separation surgery, her parents agonise over whether to allow the procedure to go ahead.
